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ADVANCE STAFF WRITER
Inhumane. Criminal. Death camp. Hell.
No matter who spoke at a conference yesterday marking the 25th
anniversary of the signing of the landmark legislation that eventually
closed the Willowbrook State School, they elicited the same brutal
language.
"The name Willowbrook always evokes painful memories," Thomas Maul,
commissioner of the state Office of Mental Retardation and Developmental
Disabilities, told those gathered for the event at the College of Staten
Island (CSI), the former site of the infamous institution that once
warehoused in filth, isolation and negligence some 6,000 developmentally
disabled New Yorkers.
(Advance
Photo/Irving Silverstein)
Panelist Bernard
Carabello of Manhattan, who spent 18 years in Willowbrook after his
cerebral palsy was misdiagnosed at age 3 as mental retardation,
agrees with calls for an apology.
"The meaning of Willowbrook transcends this room. Indeed, it transcends
the boundaries of New York state," he said. "Whether you are from Maine or
Washington state, if somebody says, 'Let us never return to the days of
Willowbrook,' everybody knows precisely what that person means.
Willowbrook means deprivation, human suffering, neglect and shame."
More than 350 people from across the state and around the nation --
including former Willowbrook residents, their parents, doctors and
lawyers, human services advocates, and two former governors -- packed
CSI's Williamson Theater to celebrate the April 30, 1975, signing of the
Willowbrook Consent Decree, the state law that triggered a flood of
reforms nationwide concerning the housing and care of the mentally
retarded and others with developmental disabilities.
Today, the vast majority of developmentally disabled Americans have
been "deinstitutionalized" by similar laws, living under supervision in
small groups in regular neighborhoods.
"For 25 years, the Willowbrook judgment has been the driving force in
creating community-based residences and expanding the educational and
vocational opportunities for the mentally retarded," said Henry J.
Kennedy, a New Brighton attorney and human services advocate, who
co-chaired the event.
"The Willowbrook Consent Decree is the catalyst, the springboard, for a
quality-of-care system, for individualized care," echoed Maul. "But it
also is a catalyst for individual rights, individual respect and
individual dignity."
The day-long symposium, called "Social Justice Has Prevailed" and
co-sponsored by CSI and the Staten Island Developmental Disabilities
Council, included a passionate -- and at times contentious -- panel
discussion on Willowbrook's sordid history.
Dr. William Bronston, a California physician who spent three years on
the Willowbrook staff before helping construct the 1972 class-action suit
against New York that eventually brought about the institution's closure,
blasted CSI officials for not constructing a permanent memorial to
commemorate the atrocities of Willowbrook.
"This is an evil place. It has an evil history," he said. "And there's
no marker that says evil was done here in the name of good."
Dr. Bronston, who claimed "crimes against humanity" were committed at
Willowbrook, demanded that the three New York governors being honored at
yesterday's conference -- Hugh L. Carey, Mario M. Cuomo and George E.
Pataki -- formally apologize to the former residents and their parents.
"At that point, we might be able to say justice has prevailed," said
Dr. Bronston, waving an old set of keys he said were from the institution.
He continues to carry the keys with him, he said, just like he carries his
"rage" over what happened at Willowbrook.
"You do owe us an apology," agreed panelist Bernard Carabello, of
Manhattan, who spent 18 years in the state school after his cerebral palsy
was misdiagnosed at age 3 as mental retardation.
But others said no apologies are necessary.
"Over the years, I've come to realize there were really no angels or
devils," said panelist Murray B. Schneps, a Riverhead, L.I., attorney who
was a Willowbrook plaintiff on behalf of his daughter.
"I just don't believe there was a specific enemy but a generalized
enemy," he said. "People make a lot of stupid mistakes. Much of what
happened at Willowbrook was just people wanting to do the right thing."
"The decree is an apology," James P. Murphy, of Manhattan, co-chairman
of the event and an official with the Association for the Help of Retarded
Children, said after the discussion. "And actions speak louder than words.
That's an implicit apology by the state of New York."
During a question-and-answer period, many Staten Islanders in the
audience expressed deep concern over recent fierce community opposition to
the establishment of local residences for the developmentally disabled in
some neighborhoods.
Some parents expressed frustration over the need to be continually
vigilant about the care of their developmentally disabled children.
"The Willowbrook war is not over," one woman shouted from the back of
the theater.
During a luncheon in the atrium of CSI's Center for the Arts,
Assemblywoman Elizabeth A. Connelly (D-North Shore), who was stuck in
Albany hashing out a new state budget, was recognized for her longtime
commitment to the developmentally disabled.
In addition, the Staten Island Advance and TV journalist Geraldo
Rivera, who was not present, were recognized for their roles in exposing
the horrendous conditions at Willowbrook that helped spur the national
reforms.
Rep. Vito Fossella (R-Staten Island) and Councilmen Jerome X. O'Donovan
(D-North Shore), James Oddo (R-Mid-Island) and Stephen Fiala (R-South
Shore) also attended the luncheon. Mayor Rudolph W. Giuliani sent a
representative. The councilmen and the mayor's representatives presented
proclamations.
At an afternoon session, Carey, Cuomo and Pataki were presented CSI's
President's Medals from Dr. Marlene Springer for their roles in
transforming the state system dealing with the developmentally disabled.
Maul accepted on behalf of Pataki, who, like Mrs. Connelly, was unable to
attend because of budget negotiations in Albany.
Carey was honored for his efforts in negotiating a settlement to the
litigation brought by more than 5,000 parents of Willowbrook children, and
for signing the judgment.
"I would have swam across the Narrows to accept this," said Carey, who
said he accepted the award on behalf of all those who helped shut the
institution's doors. "This was a team operation."
Cuomo was recognized for his work in continuing the implementation of
the judgment and in eventually closing Willowbrook and a host of other
similar state-run institutions.
"Today is a celebration, of course. But it's not enough. There's more
to be done," Cuomo said, adding that society is still grappling with
quality-of-life issues concerning the mentally ill, senior citizens, the
uninsured and the poorest of the poor.
"There is no way to help these people except through government," he
said. "That's the message of Willowbrook, too, that we come together
through our government to help one another."
Pataki was honored for his New York State Creating Alternatives in
Residential Environments and Services (NYS-CARES) initiative, which over
the next four years will phase in enough community residences for the
developmentally disabled to eradicate a huge waiting list.
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